Guidelines for Hemodialysis Registry

• Register your center by clicking on the “Sign Up” button.
• Complete the form and submit.
• Once your form is approved by the Administrator, you will receive an acknowledgement email.
• “Sign In” with your email address as the user name and your chosen password.
• Click the “New Patient” tab and complete the data for each patient..
• Fill out either the “Date of Birth” or “Age” of the patient in the data form. On filling out one of fields the other field will automatically be completed.
• Similarly either fill out the “Date of 1st Dialysis” or the “Months on Dialysis” field on the form. On filling out one field, the other field will be completed automatically.
• The patient’s CNIC number and phone number is considered essential data as it the primary source of patient identification and helps avoid any duplication.
• Laboratory data to be entered in the registry must be predialysis (predialysis labs with one day interval in case of thrice a week dialysis).
• Although there are a few essential fields, it is imperative that every attempt is made to fill out all the fields so ensure completion of registry and richness of data for research purposes.
• All patient and center data will be updated on a six monthly basis.
• In case of a significant change in any patient’s status (e.g. change in hepatitis serology status, change in vascular access, death, transplantation etc.) the patient’s data needs to be updated immediately.